We work with patient and care partner communities to ensure the medicines we develop reflect what truly matters to patients, families and care partners. We do this in several ways, including one-to-one interviews, focus groups and market research.
By listening, learning and collaborating, we are dedicated to working together to understand and improve every individual’s healthcare experience.
To ensure we continually do what is right for patients, we aim to do the following in our work with patient organisations and patient communities.
- Collaborate based on shared goals
- Respect your values and independence
- Prioritise long-term commitment over short-term needs
- Value the privacy of patient data
- Be transparent and adhere to high ethical standards
- Support patients by working together with patient organisations to understand individuals’ needs, healthcare experiences and challenges
What patient organisations have to say
“ANCAP y Astellas trabajamos conjuntamente en diversas actividades centradas en la concienciación del cáncer de próstata como la visibilización de enfermedad, así como normalizar su tratamiento y cura a través del esfuerzo de todos los agentes de nuestra sociedad.”
– La Asociación de Cáncer de Próstata (ANCAP), Spain
“Negli ultimi dieci anni, l’ANED ha operato costantemente per rafforzare l’empowerment dei pazienti nefropatici o trapiantati di organi e tessuti. Siamo lieti di poter affermare che la vicinanza e il sostegno incondizionato* di Astellas ai nostri progetti ha contribuito a diffondere la cultura dell’attività fisica come vera e propria terapia per trapiantati e dializzati e a rafforzare la consapevolezza del paziente, soprattutto in relazione all’importanza vitale della prevenzione e dell’aderenza terapeutica.”
*’il sostegno incondizionato’ significa senza alcun coinvolgimento o intervento diretto o indiretto sotto il profilo tecnologico, contenutistico, organizzativo e di risorse
– Associazione Nazionale Emodializzati Dialisi e Trapianto (ANED), Italy
“The EKPF and Astellas share common goals and seek to improve the well-being of kidney patients. This relationship enables us to continue to innovate and educate and, most importantly, improve the quality of life of patients. Astellas' support helps us to move towards our goals.”
– The European Kidney Patients’ Federation (EKPF), Spain
“The European Patients’ Forum believes it is important to partner with all stakeholders in order to advance patient empowerment and equitable patient access to care in Europe. Astellas is a respected partner, sharing such values, supporting our mission as the collective influential patient voice on European health and related policies. We appreciate the open and transparent dialogue and the independent views that we exchange, providing a mutually beneficial and sustainable partnership.”
– The European Patients’ Forum (EPF), Belgium
“Mantenemos una estrella relación con el equipo profesional de Astellas, para el desarrollo de objetivos comunes en la mejora de la calidad de vida de las personas con enfermedades del riñón, siempre desde el más estricto respecto a nuestra labor e independencia.”
– Federación Nacional de Asociaciones para la Lucha Contra las Enfermedades del Riñón (ALCER), Spain
“La Plataforma de Organizaciones de Pacientes y Astellas trabajamos conjuntamente en la organización del congreso anual de organizaciones de pacientes, un foro para el diálogo y debate que busca la mejora de la atención sociosanitaria y la propuesta de soluciones desde la perspectiva de los pacientes.”
– Plataforma de Organizaciones de Pacientes (POP), Spain
We’re privileged to work with the following organisations in the patient community. Follow the links to each organisation to find resources to support you through your healthcare experience.
How are we listening?
Astellas is committed to listening, learning and collaborating with patient communities and patient organisations. Here are some of the ways we recently collaborated with patients and patient organisations to hear what they have to say.
|Holding meetings with leaders from patient organisations to gain insights into the healthcare journey of people with bladder cancer, from diagnosis to long-term management, so that we can understand people’s needs and how we can help to address these.||Carrying out research with women who are having menopause-related symptoms to gain insights into their experiences of access to care within the healthcare system.||Supporting the creation of an expert network of patient representatives, haematologists, oncologists and healthcare managers to raise awareness of screening, treatment and psychological support for people with acute myeloid leukaemia.|
Sharing patient stories with our internal teams to shine a light on the real people behind the conditions and understand what truly matters to them.
Working with a national patient organisation to provide health information to people living with chronic kidney disease, as well as discovering what it’s like to live with the condition and what can be done to improve people’s situation.